Friedreich Ataxia

Friedreich's Ataxia is a rare autosomal-recessive disorder found in 1 in 50,000 people. This disease causes difficulty walking, a loss of sensation in arms and legs, and worsens speech. The condition is caused by mutations in the FXN gene on chromosome 9, which makes a protein called frataxin. I am a patient who suffers this disease. I suffer difficulty in walking and numbness in my legs. I was diagnosed three years ago and ever since I have feared my capabilities of continuing to follow my dreams in the world of fashion. However, I will not fear this disease any longer I am here to fight for others like me or with similar diseases. Below are some links to donate to this disease or to learn more.

xoxo, Alexis.

https://www.curefa.org/what-is-friedreichs-ataxia

https://rarediseases.org/rare-diseases/friedreichs-ataxia/